Sandhoff Disease

Online resources

There is a wide variety of resources available for
information or support for parents dealing with terminally ill children.

Here are some examples we have found - just click on the links listed.


NIH 

National Tay Sachs and Allied Diseases / NTSAD

National Institute of rare diseases

Bridges for kids

Make kids smile

Renaissance Butterflies

Childrens hospital of kings daughters

Angels of destiny

Songs of love

Curbside Md

 

Do you have a link to add to this page??

Please let us know...

email to gmwatkins74@yahoo.com

 

Search the internet for more information you may need here!