The philosophy of our Hospice is to provide the terminally ill patient and his or her family and friends supportive and loving care, in tranquil surroundings, and t he wherewithal to live fully and comfortably for as long as possible. The patient is then permitted to die naturally with dignity and comfort when that time comes.
Hospice care seeks to alleviate physical, emotional, and spiritual pain,
and to control the accompanying symptoms. The phrase, Nothing more an be done for this patient, is just not true. While it may be useless to continue curative treatments, the Hospice can give ATTENTION, FRIENDSHIP, CARE, and LOVE.
When a patient is dying, aggressive treatment becomes increasingly
irrelevant to his or her real needs. With good care a patient can die
without distress if we are willing to use all the new techniques in pain
and symptom control which can bring relief.
Hospice care should be made available to any person with a terminal
illness. We respect the patients right to be furnished, upon request, with complete and current information regarding his or her medical
condition. And to relieve anxiety, the patient is apprised of the proposed medical and nursing care plan. It should also include any significant risks that may be involved. Each and every patient shall have the right to refuse any and all treatments.
Here are links to hospice organizations
If you have a link that you would like to see added please let us know.
There is nothing harder then accepting the fact that you must plan a funeral for your child. Some families do this the minute they find out that their child has a terminal disease, others wait as long as they can, others wait
until the end has already come.
One parent says:
I remember like yesterday walking into the funeral home and telling them I needed to make arrangements for my sons funeral. From the questions they asked and then picking out a casket, this was the hardest dose of reality to have hit me then.
No matter when you decide to take the step to make arrangements its going to be hard, but its a step most are glad to be done with once its over.
Planning the funeral doesn't have to be done right away when first making the arrangements. You can make them as you go along. From planning a balloon, or butterfly release to what songs you want played, to what you want done at the funeral - these are things that will come to you over time.
But one important thing that we want to pass on to you is: most funeral homes have a insurance policy you can apply for at the time of the arrangement, now being that if you didn't already have life insurance on your
child prior to the diagnosis - you can not get it now. What the funeral homes offer is a plan that grows over time and will help to pay some of the funeral costs if the child lives past their time lines, which are not to unreal. The cost of a funeral can sky rocket quickly and you must be aware of the hidden charges they throw in, ask to see the charges and questions about your concerns.
Ask them to take into a consideration that it is a child and maybe they will assist you in the costs some. Start payment arrangements with them early on if they will work with you if funds are limited. Most people do not understand how high burial and funeral costs are and just to give you an example some parents paid at the minimum of over $7800.00. If you have any questions about anything please always
feel free to email us, we will help in anyway we can.
Here are some link for end of life memorials:
Ever Life Memorials or Memory Movies
A site to make a memory website is at: http://www.memory-of.com/